imperfect patient syndrome

brief August 18, 2009

Filed under: articles, lester, vie amapola — Amapola @ 4:53 am

1. Things that are exciting: Rebecca Lester’s new article, Brokering Authenticity: Borderline Personality Disorder and the Ethics of Care in an American Eating Disorder Clinic. If you want a copy and don’t have access, I’m happy to pass it on your way. (That goes for most of the academia I write about here). I’m getting pumped for thesis.

2. PTSD never stops sucking.

3. For folks who missed the memo, I’ve been writing some more personal, password protected posts. If you want to read, let me know.

 

Protected: self care August 15, 2009

Filed under: revolution, trauma, vie amapola — Amapola @ 12:27 pm

This post is password protected. To view it please enter your password below:


 

Protected: some thoughts on embodiment July 24, 2009

Filed under: bodies, trauma, true stories — Amapola @ 2:23 am

This post is password protected. To view it please enter your password below:


 

Protected: the weight July 8, 2009

Filed under: trauma, true stories — Amapola @ 2:37 pm

This post is password protected. To view it please enter your password below:


 

what we’re not supposed to talk about June 19, 2009

Filed under: bodies, revolution, trauma, true stories, vie amapola — Amapola @ 5:26 pm

I’ve been thinking lately that I want to write about trauma, specifically sexual abuse and assault. I’ve been thinking a lot about trauma in relation to embodiment and disassociation, coping skills and what healing actually looks like. But I’ve also just been trying to wrap my mind around the traumas themselves. I feel like I’ve developed a kind of thick skin around it, talking about sexual violence & working with survivors has become so common place– but then, I have these moments when I really think about it, really let it in, and it just knocks me over. And I want to talk about that, too.

But.

It is so fucking vulnerable. I want to be able to write parts of my stories and have these conversations, but I’m also feeling pretty apprehensive about airing too much of my dirty laundry on the internet. And there’s too much about my family, god forbid they ever find this thing.

So I think I’m going to write some password protected posts on this stuff. If you want to be able to read them, email me (youcountclouds[at]gmail) for the password; if you know me in person & I might not recognize your email address, please tell me so in the email. No promises I’ll send it to you, but the issue is not that this stuff is secret so much as scary and hard to write about. It helps to know who’s reading.

 

revolution June 8, 2009

Filed under: activism, anecdotes, bodies, revolution, true stories — Amapola @ 11:17 pm

I’m sorry I’ve been so quiet here. I keep wanting to write– starting to write– but nothing’s been coming out quite right, so I delete it or put it away to revisit, and the silence continues. Apparently the only thing I can think to write about lately is myself, and that always comes with mixed feelings.

It’s been a while since I’ve written anything. Silly journal updates, emails, anything. After being holed up sick & aching for a solid two weeks of finals, once it was all over, all the things I’d been thinking about, wanting to write about vanished from my mind and all I could think about was leaving the house, interacting with actual people (besides my partner, who, though she is my favorite person in the entire world, cannot healthily  be the entirety of my interpersonal interactive world) and watching really bad television. I always used to be embarrassed to admit that I watch TV but damn, it is really good way to turn your brain off, and sometimes that’s necessary, you know?

There was also a lot to think about. This is semester was brutal. My immune system disappeared, I was constantly sick and never fully recovered before contracting something else. I lost a lot of weight very quickly without meaning to but also without giving a whole lot of time or effort to preventing or fixing the situation, and basically looked and felt like hell most of the time. I was able to keep it together enough to avoid the imminent danger zone, but not by much. I’m petite which means even at my healthiest I don’t have much of a buffer, and didn’t start off the semester all that healthy.

And it took a toll. My body has been extraordinarily resilient over the past eleven years of off and on too low weights and malnutrition; my bones are fine, my heart is fine, there’s no permanent damage (at least for now). My body has come through for me over and over again, has survived a lot of abuse relatively unscathed. But you know what, it pitches a much bigger fit about it these days. I am only twenty-three, but I am a lot less resilient than I used to be. Maybe it’s because I’m so much healthier in so many other ways, maybe it’s because I am so much more present in my body than I used to be, maybe it’s because my beliefs about how I ought to treat myself have shifted so radically even when my behaviors fail to match up, but damn. I feel the mistreatment in ways I never used to, and much more quickly. It’s mostly little things– nausea, the way it hurts to sit down on uncushioned surfaces for too long, constant fatigue– but they add up. And I am not as willing or good at pushing through as I used to be.

But it was more than the physicalities. It was my ability to focus, think clearly, work efficiently, be present. Acknowledging that the way that I take care of myself (or don’t) can literally make me slower, less able to think– honestly, that I’m not as smart or sharp or able–it’s a much harder pill to swallow. Because deep down, I know that I’m really fucking smart and I can produce amazing work. So the fact that I was just scraping by, that my work was adequate when it could have been so much more– it’s hard. I mean, we all have rough patches and shit happens and it’s not the end of the world. But when it comes down to it, this isn’t about perfectionism or over-achieving but realizing, remembering, again, that I cannot be the person I want to be when I don’t take care of myself.

And I am often not very good about taking care of myself. After all of these years, not eating is my default setting. It’s my response to stress, to anger, to a busy schedule, to just about anything upsetting and plenty of things that aren’t all that upsetting. It’s not a conscious response and if I’m not vigilant, I don’t even notice.

I did notice these last months, but I didn’t have the time or space or energy to deal with it– my work load was too heavy, my schedule too busy, my partner and I both so exhausted all the time. I did what I was able to keep my health stable enough to finish the semester, and just kept saying, as soon as school’s out, as soon as I’m done, it’ll be different. And then the semester was suddenly (finally) over, and it took me a while to remember, oh yeah, this isn’t going to fix itself.

It’s weird in some ways, to write about this here, because rightly or not, I am sure none of you are all that interested in hearing me blather about myself. And I keep thinking, wait, this blog was supposed to be at least quasi-academic. But in the end, it kind of is. Because though my academia obviously isn’t about me, it’s about the activism I’m invested in and the communities I am a part of and an ally to, and it’s not really that useful to abstract myself in order to sound “objective” (or whatever). And it’s not honest. It’s the other reason I haven’t been writing– I can never manage to write anything worthwhile when I’m afraid of really telling the truth.

I’ve been thinking a lot about notions of space– willingness to take it and fill it, the idea of giving self-care the same span and time that my eating disorder has claimed. (I will write some other time about semantics and definitions of ‘eating disorder,’ because it so uncomfortable to use that term in reference to my current self and I want to make all sorts of qualifications). And at least for the moment, it’s going pretty well. I’m actually gaining weight and keeping it on, which is nice. My body is slowly starting to feel better. I think about the coming fall and all the work I’ll be doing over the next school year, and I want it to be fucking brilliant. I want to not be a crazy person, which is a tall order for the healthiest of people in the process of thesising. I want to be able to dance again. I want to be done with the bullshit. Which means actually doing the work now. It feels pretty good to be able to say that things are actually improving, in a way that I believe will last and keep getting better.

In a lot of ways, I think the last eleven years has been a process of getting better than I’ve been, but never really better, never solid for all that long. And though the on going steps of better-than-I-was are hugely important, and deserve recognition– I’m ready for something longer lasting. Something revolutionary. And actually believing that I am capable of that in a way I haven’t in a long time. I know so few people who’ve maintained long term recovery around their eating disorders, and far fewer whose recoveries look anything like what I want for myself. But dammit if I am not going to figure this shit out. This is so much of the work I want to do both academically and professionally, and you can’t fairly ask folks to try recovery if you don’t know that it’s possible, which you can’t really know if you haven’t achieved it for yourself. Not to mention– it’s fucking hard, painful work that you’ve no real right to ask someone else to do if you weren’t willing to do it yourself. And I want that for my community, for all the folks I love, and the ones I don’t know, who are bogged down by these messes, too. I want it for myself. It’s a revolution I can get behind.

 

humility and trust May 12, 2009

Filed under: art — Amapola @ 11:19 pm

snprofile

“From the beginning I made a decision that [my photographic] work was not going to be about me or my opinion on the subject, and that my position was going to be no position. I then put myself at a place of only asking questions but never answering them. The main question and curiosity was simply being a woman in Islam. I then decided to put the trust in those women’s words who had lived and experienced the life of a woman behind the veil. So each time I inscribed a specific women’s writings on my photographs, the work took a new direction.”

-Shirin Neshat

(from an interview with Lina Bertucci, ‘Shirin Neshat: Eastern Values’, Flash Art, November-Decemeber, 1997, pp.84-86.)

 

the big push May 12, 2009

Filed under: vie amapola — Amapola @ 6:10 pm

things that are helping me get through the last big push of finals:

1. i just bought my tickets and officially registered for AMC!

2. the flowers blooming in my garden. soon there will be more roses than i have any idea how to maintain. these are crappy cell phone pictures, but they make me happy all the same.

0512091843

0512091842a

0512091842

3. this post over at bfp’s. & this one by maia from raven’s eye. i don’t have time to write about them now, but two days and twenty pages from now, hopefully i will.

there are a lot of things i want to write about, that i just don’t have time for right now.

4. the magical chinese throat syrup that makes my consumptive-sounding-cough not hurt so much. mixed with enough honey and lemon, all that slippery elm doesn’t taste so bad.

5. reacquiring and listening to shakira’s pies descalzos album, which i have loved since it first came out when i was eight. i still know all the words.

6. the people’s yoga, the anti-capitalist (or at least, capitalism-questioning), community-oriented, amazing yoga studio in my neighbhorhood that i just discovered. classes are cheap, the teachers are unpretentious AND if i ride my bike 10 times, i get a free class. seriously folks.

7. i am no longer aching and in bed from full body whiplash, and now can just laugh about it as one of the most absurd, hilarious injuries ever. (it’s a long story that involves a mechanical bull and me kicking ass… and then getting my ass kicked).

8. i am almost free. at least for a little while. and can start doing totally non-academic, frivolous things. like planning my super queer wedding.

in the meantime, send me all the kickass-paperwriting-oomph you got. i’m going to need it.

or if nothing else, drop a comment & say hi. i have been cooped up in my living-room-turned-library-workstation and it’s getting a little lonely.

 

little things April 22, 2009

Filed under: vie amapola — Amapola @ 7:02 pm

I am going to be delinquent blogger until May 8th, as I have 2 response papers, a précis, 3 reasearch papers, a research design and a poster due between now and then.

However!

I just got to watch some of the video from BodyLove this week, and though I think I look awkward and make funny faces, it’s kind of amazing. I can’t wait to get the full DVD and get to soak in the gloriousness of everyone’s performances all over again.

I submitted a presentation proposal to for NEDA’s Annual Conference (Entitled “Not Just A Rich White Girl’s Disease: Centering the Voices of Working Class Women, Queer Women, and Women of Color in Discussions About Eating Disorders”) this coming September. I have no idea if it’ll get selected, but I’m hopeful– keep yr fingers crossed for me!

In less than three weeks, this craziness that has been this school year will be done finally, and I will get to be a person again, and queerbrownfemmegirl summer will begin! This will include: hanging out with my babies, mint juleps and lemonade on the front porch, barbecues in the backyard, getting over my fear of biking on city streets, pleasure reading, AMC!, sunshine, lots of queer femme dance parties. & more blog posts!

Just three more weeks.

 

a request April 5, 2009

Filed under: vie amapola — Amapola @ 6:34 pm

Send prayers, stamina, brilliance my way please.

For the next thirteen and a half hours, especially.